I believe to honor somebody with authentic justice is to accompany them, if only in our minds, along whatever path they are traversing. As I reread the whirlwind of Kaylyn’s diagnosis of leukemia, multiple treatments and side effects, I try to be there for the pain and also for a pathway to vibrant health. We are by your side, cheering you on to remission @lesleywhite21
⭐️ Without further ado, here is Kaylyn’s Get The Piccture
Kaylyn was admitted to MD Anderson on December 20, 2017 with a elevated white blood cell count, and diagnosed December 21, 2017 with Acute B Cell Lymphoblastic Leukemia.
According to the doctors the prognosis was really well at the time of diagnosis with 80-90% remission rate at the end of the first month of induction treatment.
However, after the induction phase of treatment Kaylyn didn’t respond to the therapies and failed to obtain remission. She was in the 2-3% of patients who did not respond to treatment.
The first month Kaylyn underwent an aggressive regiment of treatment daily steroids, chemotherapy every 4 days, lumbar punctures, and bone marrow biopsies.
The leukemia doctors went ahead and proceed with the second month of treatment even though she failed the first one. The consolidation period consisted of more lumbar punctures, and weekly and daily chemotherapies.
During this time Kaylyn developed side effects from some of the chemos which have resulted in severe nerve pain, and vision and hearing issues. After this period she was still not in remission.
The doctor suggested we try a new treatment that was just released in August of 2017 by the FDA for Acute Lymphoblastic Leukemia patients. This treatment is called CAR-T we began preparing for this and Kaylyn had a central line placed for the collection of her T cells.
Once they collected enough cells they sent them off to be engineered with a inactive HIV virus which programmed them to attack the leukemia cells in her body.
She was administered the CAR-T April 26, 2018 and was in the hospital for 41 days so they could monitor her closely. She was in ICU for 7 days.
The side effects of CAR-T can be severe and life threatening…