Just five months into living with a central line and already Saylor @thatkidwiththeunkepthair deftly illustrates what life on the line is like for her. Thank you for your willingness to share! We are wishing you continued healing and well-being.
I live with a Port due to my POTS (postural orthostatic Tachycardia Syndrome) and needing IV fluid infusions multiple times a week. I’ve had it since February 1st, 2018, and have been receiving my IV infusions since October of 2017.
I have a love-hate relationship with my line. It allows me to receive treatment and allows me to feel my best, but at the same time, it reminds me that I’m not normal. It reminds me that I’m living with an incurable, progressive genetic disorder and all of its friends. It reminds me that I’m different.
I wish people knew, and understood, what I go through on a daily basis. I wish people understood that I don’t want this; that I would change this if I could.
I wish there was more understanding for those who live with Central lines. Until there is, I’ll make my own advocacy, and rock at it!
I have received such a wonderful influx of the submissions that I am sharing them double time on Instagram. Please head on over and let me know what you think of the movement so far by leaving me a comment! @brianabeaver1