The Best Kind of Scared

I’ve spent the past eight years postgrad imprisoned in my home, frantically noting the gravity and resulting emptiness of isolation. Amongst a tapestry of treatments, pills, tinctures, there has been no salve for the loss of human connection.

If you have read any of my blog posts, you have probably caught onto a pattern of pervasive desperation for connection (i.e. “People You Die With.”You have probably noted the ferocity with which I compare physical symptoms to the intangible loss of connection, of human touch, of togetherness. This is not hyperbolic syntax; in fact, isolation and loneliness have documented negative effects on the immune system and longevity (Jinpa, 2015.) 

I’m here to tell you that what I once perceived as my inadequacies and limitations to interaction have not been the problem. The desperate attempts to conform to some ability level in order to have a friend, connection and the sacred interchange of life have been so difficult not because I was wrong. They were the wrong people for me. There is no functionality level needed to retain in order to be worthy of love. When somebody shows up to meet you in the place where you are (and fragrance-free) this is the definition of belonging, the refeeding of a purpose and a confirmation of the knowingness that there is no placebo for togetherness. This is what I have learned in the past six weeks. My people, your people, are out there.

Sharing hundreds of symptoms, adaptations my body has made to survive which society has told me are ugly failings to be tucked away, with another person, is scary. Demonstrating the severity of my brokenness is vulnerable and tremulous. But this is the best kind of scared I’ve ever been. This is the scared I’ve been waiting for.


Do No Harm

“Do no harm.” Time traveling within the folds of my mind orients me to a time when, with my innocent aspirations for untethered social service, I wanted to be a doctor. Knowing now what I do, having survived many times in spite of traditional medical care, I am envious of a reality where doctors do not cultivate harm, do not become misguided, complacent, lazy or discriminatory. That is not reality. It has become evident, that like my six-year-old self, many people gifted with the freedom of brilliant health believe that doctors do only good, are diligent givers and fastidious overachievers. Whatever illusions culture propagates about heroic physicians, keep in mind that these are archetypal. If somebody you know is ill, chances are in large part, they’re saving their own lives. Do no harm… I don’t want to be a doctor anymore. I have to be. .


For those of you leading your own journey to living your best lives, we are here for you. When you need to vent, cry, laugh or strategize, remember we’re in your corner.


Guardians of Hope is excited to be partnering with FreeArm Tube Feeding Assistant for a giveaway (a $75 value.) This is a unique opportunity to utilize a medical device that can provide additional support and freedom for individuals who utilize tube feeding and IV nutrition! To enter the giveaway on Instagram, follow us @guardiansofhopeinc
Giveaway ends February 14!

Health Update

Hi friends! After a year of treatment for various infections, viruses and other microbes compromising the function of my digestion, it’s time for some testing to see how far we’ve come and what we still have left to conquer. I am excited for some factual data about the state of gut! The comprehensive test is $200. If you are able to make a contribution to facilitate the gathering of this important information, that would be amazing! Thank you all so much for being such incredible supporters!

Click here!

Academic Advising

I wanted to take a few moments to talk with you about the founding principles of the Guardians of Hope Academic Advsing Philosophy. I subscribe to the ideology that disability is a social construct, meaning it is created by humans. The collection of physical manifestations associated with disability as a label are ascribed, not inherent. What this means is that the “limitations” society informs people with disabilities that they have are subjective. These are PERCEIVED limitations. The necessity of accommodations for facilitating educational accessibility does not signify any kind of weakness or lack of ability. 

Because I believe we all have the right to accessible, inclusive education, I am dedicated to advocating for nothing less than equal. The self-confidence I developed throughout my school years empowered me to never think twice about asking for what I needed. The mentality of motivation and self-image can be crucial in the trajectory of your college experience. Do you believe you deserve to have equal access, education and success in college? YES! You do! I am here for you, every step of the way.
Email me to schedule a complimentary conversation at

Guardians of Hope

New Website!

BIG NEWS FRIENDS! Guardians of Hope now has a website! After researching for a couple of months, creating content and preparation, we now have a one stop shop for all things GUARDIAN! Check out our growing services, meet and greet with award recipients, access resources for self-advocacy and be sure to check out our blog, Guardian Gab! You might recognize some of your dearest friends from the online chronic illness community! Including your photos, your voices, your visions is crucial to our mission.

Honestly, I believed that creating a website was beyond my ability level. But, I did it! We are doing this; modeling supportive Community health solutions! AND… I am so excited to announce that we will soon be providing parent to parent supportive sessions! Please follow @guardiansofhopeinc for updates! What do you all think of the website? 

Guardians of Hope

Disability and Higher Education

With more than 40 million Americans with disabilities (2016 statistics) and federally mandated accessibility laws, you might be surprised to learn that a disproportionately low number of people with disabilities have a college degree. Individuals age 25 and older with a disability who have a college degree comprise 16.4% of the population in comparison with 34.6% of people without a disability (Bureau of Labor.).



Societal standards and expectations for people with disabilities make it difficult to pursue higher education. Not only are there few public role models to demonstrate a path toward this journey, there is resistance from bureaucratic institutions toward people with disabilities in pursuing their aspirations. We are here to tell you that you can pursue your dreams of higher education! No matter what the circumstances of your ability levels or health, you deserve equal access, reasonable accommodations and support. In addition to validating your educational aspirations, we can provide advocacy and education to facilitate your progress in a higher education. Whether you’re interested in online classes or attending school on campus, there are a variety of tools available to empower your success. Let’s connect with a complimentary conversation! Message us to schedule an appointment or email us at