I wanted to take a few moments to talk with you about the founding principles of the Guardians of Hope Academic Advsing Philosophy. I subscribe to the ideology that disability is a social construct, meaning it is created by humans. The collection of physical manifestations associated with disability as a label are ascribed, not inherent. What this means is that the “limitations” society informs people with disabilities that they have are subjective. These are PERCEIVED limitations. The necessity of accommodations for facilitating educational accessibility does not signify any kind of weakness or lack of ability.
Because I believe we all have the right to accessible, inclusive education, I am dedicated to advocating for nothing less than equal. The self-confidence I developed throughout my school years empowered me to never think twice about asking for what I needed. The mentality of motivation and self-image can be crucial in the trajectory of your college experience. Do you believe you deserve to have equal access, education and success in college? YES! You do! I am here for you, every step of the way.
Email me to schedule a complimentary conversation at firstname.lastname@example.org
Guardians of Hope
BIG NEWS FRIENDS! Guardians of Hope now has a website! After researching for a couple of months, creating content and preparation, we now have a one stop shop for all things GUARDIAN! Check out our growing services, meet and greet with award recipients, access resources for self-advocacy and be sure to check out our blog, Guardian Gab! You might recognize some of your dearest friends from the online chronic illness community! Including your photos, your voices, your visions is crucial to our mission.
Honestly, I believed that creating a website was beyond my ability level. But, I did it! We are doing this; modeling supportive Community health solutions! AND… I am so excited to announce that we will soon be providing parent to parent supportive sessions! Please follow @guardiansofhopeinc for updates! What do you all think of the website?
Guardians of Hope
With more than 40 million Americans with disabilities (2016 statistics) and federally mandated accessibility laws, you might be surprised to learn that a disproportionately low number of people with disabilities have a college degree. Individuals age 25 and older with a disability who have a college degree comprise 16.4% of the population in comparison with 34.6% of people without a disability (Bureau of Labor.).
Societal standards and expectations for people with disabilities make it difficult to pursue higher education. Not only are there few public role models to demonstrate a path toward this journey, there is resistance from bureaucratic institutions toward people with disabilities in pursuing their aspirations. We are here to tell you that you can pursue your dreams of higher education! No matter what the circumstances of your ability levels or health, you deserve equal access, reasonable accommodations and support. In addition to validating your educational aspirations, we can provide advocacy and education to facilitate your progress in a higher education. Whether you’re interested in online classes or attending school on campus, there are a variety of tools available to empower your success. Let’s connect with a complimentary conversation! Message us to schedule an appointment or email us at email@example.com
Social media has a way of concealing aspects of us that are otherwise unapparent in daily life. Unless pertinent to disability awareness or advocacy, I don’t often talk about having a physical disability, mostly, because it’s not important in my self image. However, in an unexpected way, bringing this up in conversation with somebody over the phone, can be an immediate, revealing snapshot of their true colors. Unlike chronic illness, people take a much more aggressive stance about physical disability; they either acknowledge it and move on or they say something blatantly offensive. The latter is something I experienced in a phone conversation last night. I somehow suspected this person would fall into this category despite other indications of integrity and charm; there was just something not right. And then, there was something very not right when he projected offensive, immature and amoral commentary about cerebral palsy. And just like that, I knew I would not waste any more time getting to know him. Funny how one sentence can change everything.
And yet, in the seconds that lapsed between what he said and my brain scrambling to believe it, I tried to make excuses for him. Maybe I had misunderstood. Maybe this was some kind of inappropriate but well intentioned commentary. But then I knew. The fact that anybody would actually even think this way, is offensive and demoralizing.
Follow me @brianabeaver1
Our need-based financial awards have been designated to supporting individuals with chronic illness affected by the Camp Fire. The influx of applications we have been receiving from the local hospital and social workers indicate the gravity of need in Butte County. These heart-wrenching stories of the loss of shelter, resources for daily survival for populations already struggling with illness has mobilized us to take action! Because of the gifts made Guardians of Hope, we were able to disperse the first award to a retired Paradise Elementary school teacher this week (pictured.) After a stroke in 2015, she has been unable to continue working and is in immediate need of support to help make possible for her doctor appointments, fill prescriptions and replace accouterments after losing her home to the fire. We are honored to support her in these efforts and thank you for making it a profound difference!
NEW! You can now find GOH on Instagram @guardiansofhopeinc
Check out this video about Guardians of Hope from Jason Dragos ! We appreciate the partnership from HealthBeMe in facilitating the actualization of our mission. You can join in to support individuals with chronic illness who have been affected by the Camp Fire by making a donation today! All proceeds go directly to individuals in Butte County who need it most! Thank you for joining the Guardians of Hope Community! .
Or click HERE to make a gift and make a difference in the lives of families right here in our beloved community.
Cured. This is what every individual with a chronic illness wakes up and goes to bed striving to be. Over the course of my lifetime, no practitioner or doctor has ever discussed with me if I can reasonably look forward to a life without illness. Mostly, I believe now, the reason for this is because they were never able to figure out really what has been led to the degradation of my health in the first place. But this post isn’t about their past wrongs, it’s about now. Over the course of what was a very emotional appointment this weekend with my nutritionist, we talked about the present and the future. Honestly, Joshua is somebody that is so incredibly intelligent and intrinsically wise that I have a difficult time trying to describe him. I can say, however, when I dissolved into a tangent rant about humanity being cruel and how deeply this breaks me on a daily basis, he listened intently just as he always does, then validated my feelings. Our plan for the next month is to completely resolve any lingering parasitic beings and all remaining bacterial infections.
Unfortunately, this isn’t going to be any easier than the past couple of months have been. He said there is no legitimate testing available at this point to conclusively assure us that the parasites and infections are gone. Is that the near future, I will be pursuing parasite testing from the most comprehensive analysis available. For now, we will be proceeding to a four week treatment that will give us undoubted reassurance of successful treatment after I make it through. We talked in great detail about the etiology of my problems, a conversation which I learned mind blowing information about health, the core of how disease starts and why so many of us have such a difficult role in healing. Wow. Just wow. Because my viral symptoms have re-emerged, he said this indicates the parasites are almost completely, if not completely gone. When they are present, the viral infections are superseded and cannot gain the upper hand and demonstrate symptoms. In order to eradicate completely all of my viruses, we must first evict every parasite, egg, and larvae. We are nearly there.
The best thing though, about this whole conversation is that he unequivocally believes I can be 100% healthy. 100%. Healthy. Cured. More beautiful words have never been spoken. And so, we keep going.